A Hard and Hopeful Week from NYC

Whirlwind. Bitter. Sweet. Crazy. Tough. Long. Emotional. Doubting. Hoping.

That's about how I would describe this week for our family.

On Tuesday, I flew up to NYC with our boys and our family was reunited for the first time in 7 months.  Beth was thrilled just to watch them play and see how they had grown and changed.

However, Beth was still having trouble eating and drinking.  As the week progressed she grew very weak and tired, requiring IV fluids at the hospital on Wednesday & Thursday.  She started vomiting when she tried to swallow her medicines.  We both realized this had the potential to become serious and that her struggle eating/drinking had gone on long enough. So on Friday morning we made the difficult decision to cut the boys visit short  -- I would fly them home, Beth would go to the hospital, and I would fly back to NYC late Friday night.

Beth was readmitted to the hospital Friday afternoon to get an "NG Tube" for feeding (pretty uncomfortable procedure). However, by the time I got back to the hospital around midnight Beth was already feeling and looking much better.

The eating troubles seem to be coming from a severe case of mucus literally streaming down the back of Beth's throat and the cause is still somewhat unclear, although the doctors believe it is temporary and will resolve.  She will receive a G-tube on Wednesday as part of a longer term/less invasive "eating" solution.

Also, a PET Scan was repeated on Wednesday and the results show that the Epstein-Barr virus is in full retreat.  Most of the "nodes" are gone and the ones that remain are significantly smaller.

So while this week was not what we had hoped for with our boys, we have learned that our perspective cannot be limited to days or even weeks.  And the bigger picture perspective is much brighter: leukemia is in remission, her bone marrow graft is strong, EBV is going away, she is finally getting the nutrition her body needs, our boys are doing great, and ... most especially, the tomb of Jesus Christ is still empty!!