This week we're bringing the boys up to the "Big Apple" to see their mommy! I'm so excited for the boys and for Beth who has not seen them in 7 months!! Our incredible doctors have even worked Beth's check-up and treatment schedules so our time at the hospital is minimal. I'm flying up with the boys by myself so I'll be in man-to-man defense in the ATL airport and at 35,000 feet!!
Beth is improving but it is slower than we expected. The procedure to clear out her throat last week has helped but eating is still slow. The "stuff" they removed from Beth's nasal passageways revealed a fungal infection so the doctors added a high powered anti-fungal medicine. On the positive side her pneumonia is gone :)
Dr. Boulad explained that healing and recovery takes longer in older transplant patients and especially in those who have Fanconi Anemia. She is going to undergo some more treatment to hopefully knock the rest of the EB virus out and then the doctors will be in a position to evaluate where we are overall in post-transplant recovery. Her graft (new marrow) continues to be strong, it just takes (more) time for the immune system to mature to the point where it can completely protect Beth from infection.
Thanks for your continued prayers and support!
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