Update from NYC

First of all we want to thank you so much for your prayers, love, and support.  They have lifted us up and increased our confidence in our awesome God.

Today we met with Dr. Boulad, a pediatric oncologist who also specializes in adults with Fanconi Anemia.  He confirmed Beth's diagnosis of MDS.  He outlined our treatment plan:

1. We fly home tomorrow :)


2. Because of the risk of infection (Beth's white count is very low), she must remain at home and relatively isolated.


3. Beth has another bone marrow biopsy in 2-3 weeks to determine the rate of MDS progression.


4. We are moving to have a bone marrow transplant in 6-8 weeks.
   
   
   
   1. The donor search starts now.
   
   
   2. Once Beth is matched with a donor, the transplant process will begin.
   
   
   3. This process will require Beth to be in the hospital here in NYC for 2 months and remain in the New York area for 4-6 additional months to be closely monitored.
   
   
   
   

Prayer Requests:

• For God to be glorified in ALL of this!!


• For miraculous healing!! That the biopsy in 2 weeks comes back NORMAL!!!


• For Beth to stay free from infections.


• For Edwin who is an FA patient who started the transplant process today ... pray for his healing.


• For John, another FA patient fighting mouth & throat cancer ... for healing & recovery.
  
  
  
  • We were blessed to meet both John & Edwin today and pray with them and their families.
  
  
  
  


• For the donor match process to go quickly and smoothly.
  
  
  
  • We can only be matched with someone already on the registry.
  
  
  • Many people have asked about being a bone marrow donor for Beth.  While this is not possible, you can still become a donor and help save someone else's life. Go to BetheMatch.org to find out more information.
  
  
  
  


• For our families.