This adversity has definitely been teaching us that God while God values prayer, He especially values persistence and perseverance in prayer (Luke 18:1). Thank you Rock Bridge, family and friends all over for continuing to pray for Beth and our family!! Know and trust that God is working -- medically yes, but also in ways that go far beyond the physical healing we seek for Beth.
Here is where we are:
- The latest scan revealed that all of the Epstein-Barr "sites" in Beth's body are significantly smaller, except a slight increase in the size of a site on her liver (within the test's margin of error).
- The doctors are very encouraged and optimistic about these results. The T-cell therapy is working but it does take time and Beth's immune system is still not able to fight off the virus on its own. She will receive at least 2 more doses of EBV-fighting T-cells (apparently T-cells are sort of like highly trained SEAL teams :)
- We are still in the hospital.
- Her throat is healing and one scab/sore remains. As this heals, Beth will be able to eat and drink more and then she should be able to be released. This could be this weekend or the first of next week.
- Will Beth be able to come home in late June, at the post-transplant 6-month mark?
- While that question is on our minds, the doctors are not discussing it at this point. Getting home in late June has always been an estimate and somewhat of a moving target. The doctors' goal is getting rid of the EB virus and helping Beth's immune system get to a point of self-sufficiency where she will be able to fight off viruses, bacteria, & fungi on her own and thus be much more protected ... and we are not there yet. We could get 'there' by late June (pray!), but that is uncertain at this point.
- The Epstein-Barr virus in post-bone marrow transplant patients is very serious ... more so than we thought, knew or imagined. The treatments are complex and take time to produce the desired results. However, they are working, Beth is fighting, and we are praying!! God is in way more control than I ever knew and God's love is way deeper than I understood back in November when Beth was first diagnosed ... and with His sovereignty and grace at work, our work is to rest.
Seeking to rest,
Matt